Wednesday, 27 May 2009




Day+111
Hi there from Manchester….trust you are all well and enjoying half term.
We had a very lively start to ours. It’s all in the photos if you look carefully….yes we flooded the shower. It’s known in our cubicle as ‘showergate’. It was quite innocent really…..I switched the shower on, to warm up, as you do, and 5 mins later water was all but gushing from under the bathroom door. The photo shows me baling it out before anyone ‘influential’ arrived. Ella reversed her chariot all the way down to the door in about 10secs to have a look, just as her lines started to beep. That of course brought a couple of nurses in and before we knew where we were the whole world knew. How embarrassing!! A plumber was called….we are still waiting.
Ella was up and dressed early too, in a snazzy little striped ensemble, ready for the impending physio visit. When Jan arrived she set a very daunting task…to walk to Muriel’s other toy cupboard, which is outside the unit. We took a nurse and a chair ( for rests ) with us and eventually we got there. Ella chose 2 games and we set off back. For this dear little girl it must have been like climbing Everest….it was a real struggle….but we made it back all in one piece. I know we have to challenge her a little bit more each day, but it is sooooooooo hard.
This afternoon has been a mixture of ‘snoozing and doing’. The first speaks for itself and the doing part produced a green bathbomb, 2 pizzas ( from scratch) and a fresh fruit salad. I’ve got to admit that most of the ‘doing’ was one sided, but Ella enjoyed watching and that’s the main thing.
Sally and I have been planning how we are going to down size all the treasures we have accumulated in here, over the last 4 months. Every one is precious, but we know that we have been very fortunate so far, in being allowed to keep so much in Ella’s room. It will be a very different set up in the new hospital, with only the bare minimum of possessions allowed in the cubicles. We’re not looking forward to that part of it….1 teddy, no snugglies, no towels etc and all the toys the children need being provided by the hospital....ummmmm! But back to the immediate problem of sorting out! Today we said goodbye to Annabel, her wardrobe and all the teddies, except Tiger and Geoffrey. They’ve gone on holiday to Ainsdale on Sea. Thanks Ian !! Of course it hasn’t made any difference to the clutter, but by next week we should be fashionably ‘minimalist’.
At the moment we are watching ‘Titanic’.( sorry all you football fans out there) and Ella is fast asleep. We are coming to the sad part at the end, so I think a cup of tea might be in order, to charge us up physically ready for the emotional trauma to follow! What do you think?
Nite nite to everyone, and as usual all our thanks for your prayers and support
Lots of love,
Ella, Sally and Annette.xxx
PS Who's blue spotty pj's are those?

1 comment:

  1. Love the spotty pj's! My guess is they are Nana's.
    First you try to set the place on fire - now a flood! Well really girls it's a good job Ella, the sensible one is around to keep her eye on you is all I can say.
    Ella, Heather has got a job! She has been modelling today for the new Southport holiday brochure. She has a new improved Mummy And Daddy and a little brother for the 2 days of the photo shoot. One of the locations today was Splash World - which they had to themselves for 2 hours. You can imagine what fun they had on the slides. Tomorrow they are being photographed on Ainsdale beach ( if we see Annabel we'll give her a hug) and the pier, motor boats, crazy golf etc. Hope it's sunny for them. I'm a bit worried that she might like er new skinny, young Mummy better than the old model.
    You sound like you are becoming an expert driver in your new wheelchair. I'm looking forward to a demonstration next time I see you.
    Lots of love and hugs, Auntie June.xxx

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