Day +96
Hi there. Just a quick update for you on today. We all had a fairly peaceful night and 8.00am saw Sally and I drinking tea and eating egg on toast. Mind you, we knew that Auntie Rachael and Little brother were on their way and we wanted to be ready.
Rachael brought her latest prize possession….her sewing machine. She has embarked on a dress making course at College, and so had brought all her ‘stuff’ for us to see, including a dress she is already making for Sophie. It wasn’t long before all the other dress makers on the unit were sharing notes, including Muriel, who is very experienced and gave a lot of good advice.
Sam brought his usual cheery self, and after a quick kiss and cuddle he was going up and down on the electric bed, with Ella at the controls of course, and then he went off to make a sequinned picture with Mummy, while Ella had her wash etc. When she was ready she sat out on the ‘throne’ (big brown chair), propped up with squishy pillows, looking very comfortable.
Ella got a special bravery award today……..a fibre optic lamp. When the Dr arrived late morning, he told us that Dr Wynn and all the other teams had met to discuss Ella and it had been decided to fit Ella with naso- gastric tube for two reasons. Firstly, so that she could be given a barium meal in order to Xray her tummy, and secondly to try her tummy out with a tiny amount of feed, 1ml an hour, to see if she can tolerate it. Sam and I went to see how the birds are getting on whilst it was fitted and when we got back it was all done. It meant quite a few processions, to be Xrayed, as you can imagine and we are going again first thing tomorrow to track the progress. As for the feed…..well her IV feed is still going of course, and this milk feed is to try her healing tummy out.
The new lamp is great, by the way, and has been glowing all night
I think I’ve told you all the news now. Unfortunately we had to miss physio because of the Xrays. Sam was looking forwards to going to the gym, but never mind , we can try again tomorrow. As for Ella’s cooking today….well she ‘constructed’ our pizzas for tea tonight. She had run out of steam by tea time and just didn’t feel like chopping or grating. But they were beautifully arranged instead!!!!
Oh! When the physio came up to see Ella she said that her new ‘chariot’ may be ready in a couple of days……so we had better get started on our designer armrests I think.
We are going to finish now and get this news posted off! As usual we send everyone our love and thanks, for all your prayers and support.
Ella, Sally and Annette.xxx
PS This shouldn’t really be a PS because it’s very important. Simon has broken through his target amount. We are delighted here, as I’m sure you are too. He still hasn’t let me know if Lizzie is coming along?