



Day + 102
Hi and welcome to Manchester. The weather has been ‘orrid….but inside here it has been sunny and warm. We have had a super day, following a good night! In fact the night was so good that I overslept and only woke up when Sally rang ‘the cave’ phone at 6.00am to see if I was OK! I hot tailed it back up here I can tell you!
We got going properly with Ella asking if I would make Mummy breakfast ‘in bed’, she wanted me to make something to do with eggs. So off I went, and decided to make boiled eggs and toast. So far so good…but then I realised we didn’t have any egg cups. Never mind, we made do and Ella was delighted to help us to eat it.
By now Ella was bright and breezy and we were drawing a picture for Dr Wynn at 9.00am. ( a motorbike). When he arrived, plus entourage, he had a good chat with us about Ella’s possible further treatment and she gave him her picture. She didn’t speak of course…but that didn’t matter....they were on the same wave length. As a matter of fact he did a drawing for us too. As you can clearly see it is an anatomically correct drawing of Ella’s digestive system! No wonder she has tummy ache sometimes! When Janet came later and we looked at it again, we just had to laugh.
Our day went from good to great when Simon arrived, to show us his medal and give us a cheque for some of the funds pledged. We were expecting him and after the ‘photo shoot’ Ella’s first question was
“Do you like chips?”
Of course, when Simon said he loves chips off I was sent to get some from the restaurant for him, which Ella prepared by ‘vinegaring and saucing’. Guess which pudding beginning with ‘N’ had to finish them off?
It was time for a quick snooze after Simon had left. We should have gone to physio, but Ella slept through her appointment. She didn’t really wake up when her lines came down either. We made up for it a little later though, when she had a walk up her room with nurse Alison to the window at the end, and back again. Then she had a cuddle with Ali, while Jane and I changed her bed etc. Real Princess treatment!!
Ella has earned another ‘Star’ prize….because she has had her naso/gastric tube fitted again. She chose a tiny ‘magic’ fish tank, where the fish grow when water is added. Sally was wandering if we had room for real fish in here…….Only battered and then fried crispy.
We are now watching ‘Gavin and Stacy’. ( memories of AMC ) Sally is in hoots and Ella is fast asleep, snuggled down, in amongst 8 pillows. We seem to be breeding pillows in here, but she deserves to be cosy and that’s the end of it.
Oh, we need to wish a very happy birthday to Colette today, Simon’s wife, hope you had a lovely day!
We are finishing now and then we can all settle down to get an early night. We send you all our love and as usual our thanks for all your prayers and loving thoughts.
Ella, Sally and Annette.xxx
Hi and welcome to Manchester. The weather has been ‘orrid….but inside here it has been sunny and warm. We have had a super day, following a good night! In fact the night was so good that I overslept and only woke up when Sally rang ‘the cave’ phone at 6.00am to see if I was OK! I hot tailed it back up here I can tell you!
We got going properly with Ella asking if I would make Mummy breakfast ‘in bed’, she wanted me to make something to do with eggs. So off I went, and decided to make boiled eggs and toast. So far so good…but then I realised we didn’t have any egg cups. Never mind, we made do and Ella was delighted to help us to eat it.
By now Ella was bright and breezy and we were drawing a picture for Dr Wynn at 9.00am. ( a motorbike). When he arrived, plus entourage, he had a good chat with us about Ella’s possible further treatment and she gave him her picture. She didn’t speak of course…but that didn’t matter....they were on the same wave length. As a matter of fact he did a drawing for us too. As you can clearly see it is an anatomically correct drawing of Ella’s digestive system! No wonder she has tummy ache sometimes! When Janet came later and we looked at it again, we just had to laugh.
Our day went from good to great when Simon arrived, to show us his medal and give us a cheque for some of the funds pledged. We were expecting him and after the ‘photo shoot’ Ella’s first question was
“Do you like chips?”
Of course, when Simon said he loves chips off I was sent to get some from the restaurant for him, which Ella prepared by ‘vinegaring and saucing’. Guess which pudding beginning with ‘N’ had to finish them off?
It was time for a quick snooze after Simon had left. We should have gone to physio, but Ella slept through her appointment. She didn’t really wake up when her lines came down either. We made up for it a little later though, when she had a walk up her room with nurse Alison to the window at the end, and back again. Then she had a cuddle with Ali, while Jane and I changed her bed etc. Real Princess treatment!!
Ella has earned another ‘Star’ prize….because she has had her naso/gastric tube fitted again. She chose a tiny ‘magic’ fish tank, where the fish grow when water is added. Sally was wandering if we had room for real fish in here…….Only battered and then fried crispy.
We are now watching ‘Gavin and Stacy’. ( memories of AMC ) Sally is in hoots and Ella is fast asleep, snuggled down, in amongst 8 pillows. We seem to be breeding pillows in here, but she deserves to be cosy and that’s the end of it.
Oh, we need to wish a very happy birthday to Colette today, Simon’s wife, hope you had a lovely day!
We are finishing now and then we can all settle down to get an early night. We send you all our love and as usual our thanks for all your prayers and loving thoughts.
Ella, Sally and Annette.xxx
Hi Ella and Co,
ReplyDeleteWow!!! What a medal, you truly do deserve that Ella (and Simon) after all your bravery and hard work!!
Love the pics, always enjoy reading the blog but love seeing the photos!
Oh well, we're off to school in a bit, I wonder what the day has in store. Hope you have a great day, keep smiling brave girl.
All our love
Jane Tom and Sean xxxxxxxx
Morning Ella, Loulou Bunny was up really early with nick & went straight into the green house obviously her "new den" where yesterday she decided to topple over one of Nick's tomatoe plant pots and spread all the soft warm soil over the floor which she is paddling down to make a lovely warm little bed so she can snooze the day away & it doesn't matter to her if it rains as she is completly dry. the other day I got some fly papers so that when she's in there she's not bothered by flys & other carwly things, but they were sooooooo sticky both my dad & I ended up with our finger stuck together & it took ages even with lots of soap & nail varnish remover to get the sticky off our fingers. but it works so thats the main thing, hope the spiders don't go near it as I love spiders even the bit hairy ones as long as they don't jump on me. i wonder what you'll be making for your mummy & nana to eat today.... you should get them to find some toasty bags then you could make them sandwhiches that then pop into the toaster so they could have hot ham & cheese toasties, or what ever you can concoct.. but don't forget to warn the fire brigaded first. hope your days are improving even if its only slowly Sending you as always huge rainbow wishes & lots of fairy kisses Sallyanne, Nick & a very snuggly Loulou Bunny X X X X
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