Day +92
Hello and welcome to Manchester. At the moment I think we are in the middle of a cloud burst. It is about 11.30pm and Ella’s tree is really being whipped up by terrific winds, not to mention the torrential rain battering on the windows. Good job we are all snug and protected in here.
Well, we have had a great day. Ella had a comfortable night….she is always awake many times throughout the night, but the last few have been pain free and she has gone straight back to sleep again.
We started off by planning our menus for the day, and as Martin was coming along for a visit we wanted to include him too. As you can see from the photos Ella soon roped him in as her second in command. They were making wraps….and I must say they were very delicious, with every filling inside them that could be squeezed in! I think we have converted Martin to garlic mayo!
In the middle of all this Grandma and Grandad arrived. Of course they were delighted to see Ella joining in and looking so much better. By now we had quite a roomful, but it didn’t stop there….Janet arrived next! Poor Janet valiantly read to Ella and did some Maths, with all this food and stuff and people around. I think at one point there were 7 of us in the room, not including Ella. After Martin had left for home Ella then went on to make a jigsaw with Grandma and Grandad, so she had a really full afternoon. She deserved the big sleep she had.
Whilst Ella was asleep Dr Wynn arrived and had a chat with Sally and I. He is very, very pleased with Ella’s scope results, they show a definite improvement in the gut, and the virus levels have fallen too. We are going in the right direction, slow and steady. We know that he measures his words carefully and this news is very encouraging indeed. We asked him about whether or not we would be moving into the new hospital with them and he said yes. This unit closes here in the middle of June….so at least we have got time to hire the low loader, which we will need to move us in.
Our ‘ home economics department’ was out later on, because Ella woke up remembering that she was making stuffed peppers for our tea. So all the organising began again with Ella lovingly layering courgettes, mushrooms, cous cous and cheese, and by 6.00pm they were in the oven looking gorgeous. They tasted gorgeous too…..a real treat while we were watching Corrie.
Tonight we have really just been watching TV. We tried to have a bit of a tidy round, but we have got so much in the room now, it doesn’t look much different to be honest. Still, it is an extension of our home at the moment soooooooo it is homely!
The unit is quite empty at the moment…just 4 transplant patients in, so the children have almost got a nurse each. Sometimes if they are short of beds on another ward they may send the patient here. At the moment the cubicles are empty though.
Right now it is my turn to sit up. Sally has gone down to the cave to have a proper sleep and I am going to settle down on our ‘big brown chair’. Ella has taken the last of her oral medicines and is fast asleep, so it seems really quiet and still. Just me and the fairies awake. We only have one set of fairies up at the moment. The white ones fluttered down last week and wrapped themselves around nurse Rachel’s neck as she was coming in during the night. We have been promising to fix them back up, so that will be a job for tomorrow. Maybe Damian will fix them when he comes. He is bringing Sam to see Ella and then Sally and I are taking him back home for some ‘Mummy’ time.
We will say night night now, and send you lots of love. As always our thanks for your prayers and loving support.
Ella, Sally and Annette.xxx
Hello and welcome to Manchester. At the moment I think we are in the middle of a cloud burst. It is about 11.30pm and Ella’s tree is really being whipped up by terrific winds, not to mention the torrential rain battering on the windows. Good job we are all snug and protected in here.
Well, we have had a great day. Ella had a comfortable night….she is always awake many times throughout the night, but the last few have been pain free and she has gone straight back to sleep again.
We started off by planning our menus for the day, and as Martin was coming along for a visit we wanted to include him too. As you can see from the photos Ella soon roped him in as her second in command. They were making wraps….and I must say they were very delicious, with every filling inside them that could be squeezed in! I think we have converted Martin to garlic mayo!
In the middle of all this Grandma and Grandad arrived. Of course they were delighted to see Ella joining in and looking so much better. By now we had quite a roomful, but it didn’t stop there….Janet arrived next! Poor Janet valiantly read to Ella and did some Maths, with all this food and stuff and people around. I think at one point there were 7 of us in the room, not including Ella. After Martin had left for home Ella then went on to make a jigsaw with Grandma and Grandad, so she had a really full afternoon. She deserved the big sleep she had.
Whilst Ella was asleep Dr Wynn arrived and had a chat with Sally and I. He is very, very pleased with Ella’s scope results, they show a definite improvement in the gut, and the virus levels have fallen too. We are going in the right direction, slow and steady. We know that he measures his words carefully and this news is very encouraging indeed. We asked him about whether or not we would be moving into the new hospital with them and he said yes. This unit closes here in the middle of June….so at least we have got time to hire the low loader, which we will need to move us in.
Our ‘ home economics department’ was out later on, because Ella woke up remembering that she was making stuffed peppers for our tea. So all the organising began again with Ella lovingly layering courgettes, mushrooms, cous cous and cheese, and by 6.00pm they were in the oven looking gorgeous. They tasted gorgeous too…..a real treat while we were watching Corrie.
Tonight we have really just been watching TV. We tried to have a bit of a tidy round, but we have got so much in the room now, it doesn’t look much different to be honest. Still, it is an extension of our home at the moment soooooooo it is homely!
The unit is quite empty at the moment…just 4 transplant patients in, so the children have almost got a nurse each. Sometimes if they are short of beds on another ward they may send the patient here. At the moment the cubicles are empty though.
Right now it is my turn to sit up. Sally has gone down to the cave to have a proper sleep and I am going to settle down on our ‘big brown chair’. Ella has taken the last of her oral medicines and is fast asleep, so it seems really quiet and still. Just me and the fairies awake. We only have one set of fairies up at the moment. The white ones fluttered down last week and wrapped themselves around nurse Rachel’s neck as she was coming in during the night. We have been promising to fix them back up, so that will be a job for tomorrow. Maybe Damian will fix them when he comes. He is bringing Sam to see Ella and then Sally and I are taking him back home for some ‘Mummy’ time.
We will say night night now, and send you lots of love. As always our thanks for your prayers and loving support.
Ella, Sally and Annette.xxx
Ella, I think you've converted us to wraps, they look delicious hopefully I'll be better at preparing those than the macaroons! Are you going to write a recipe book?
ReplyDeleteAna is now the very happy owner of a pink pair of trainers complete with flashing lights as we couldn't find any just like yours, but I know she's very happy with these ones, she is already talking about wearing them on mufti day next Friday (22nd) lets hope she doesn't get them dirty before then! Planting plants and playing Bear Hunt in the flower beds could prove a problem!! We had to get Clarissa a pair as well as she’s managed to post one of her old shoes into the “Land of Lost Shoes”, we think it’s over the edge of the garden balcony into a hedge and nobody is brave enough to climb up or down to check! She just keeps saying “shoe hiding” so after two weeks I’ve given up! It will probably turn up now hidden in the playroom. Last time we found it in the dolls house!!
It’s get to hear the Dr Wynn is so pleased with you and that the virus and tummy problems are improving. We’re thinking of you and your band of intrepid carers.
Love the Waites