Day +249 (Mon 12th Oct)
Hi. We’re back again. It’s just after midnight and I’m taking this quiet time to catch up on today’s events. Ella has woken up for a ‘pit stop’ so while she settles back down again I’m having a quick cuppa and a bag of S. and V. crisps, made all the more special as I’m doing it by the light of the computer. She has had a wonderfully, unbroken sleep from 7.15pm, so I’m hoping she will have another until 7.15am. Somehow I don’t think so though!
We have had a good day today, even though we had a very restless night last night. There were times today when I thought I would fall asleep on the spot! They were only blips though, and a good sit down and restful evening soon pick you up again don’t they? We started the day early, with a bed wash for Ella, so that when Linda arrived we were able to get her out of bed together.
Ella had been looking forwards to Linda’s visit, because they were going to make a special ‘crown flan’ together. True to her word Linda brought all the ingredients to keep the three of us busy for an hour….and the results were magnificent, as you can see from the photos, not to mention great to eat too.
Soon after Linda had left Liz arrived for Ella’s lesson, with another treat for her….. home grown raspberries. How kind it is of everyone to remember Ella, even when they are off duty! We spent almost another hour talking about fish and looking at pictures of them, ready for Ella to try some drawings to make a wall display of. Our underwater adventure story will have a super background when it is displayed then. Just as Liz was finishing Sam and Mummy arrived and that added a whole new dimension to the fish book, as Sam chatted away about the pictures. It helped motivate Ella a little as well.
Liz left and who should arrive? Yes the physio. Ummm. We had to have a bit of negotiation before Ella set off on her walk to the nurses’ station, but we got there and back, with a rest in between.
Sam had his ‘bloods’ done in here this time. He was very good as well….not one tear. Linda had come back especially to meet him, so he was feeling very proud of himself. Linda will work with the whole family, if we need her to, so today was a good opportunity to meet Sam and to think about a time that when he comes to see Ella, Linda could work with both of them together.
By the time Mummy and Sam were ready to set off home before the rush hour, Ella was really tired and grumpy, and it wasn’t long before she was fast asleep. At this point I need to tell you about the arrival of the new TV!! It came this afternoon during physio, and as we thought, it was set up level with the bed head, so that the child needs to be a contortionist to be able to watch it in bed. There is no doubt about it….there has been no thought, what so ever, put into the planning side of making this a child friendly environment. I don’t think it’s just me, is it, who thinks a TV should be facing you when you watch it? Anyway, it’s facing us now…..I moved it, to where ours was, and at the moment it’s plugged into our ariel. They are coming back tomorrow to try and fix it up in a place facing the bed. There aren’t many places, facing Ella’s bed, to choose from as you can imagine…..so we’ll have to wait and see what they come up with!
I’m going to close now on a much less grumpy note…..we hope you enjoy the photos of Ella and Linda making the ‘piece de resistance’.
Nite nite and lots of love to everyone. Thanks for all your loving prayers and support, as usual.
Ella and Annette.xx
Hi. We’re back again. It’s just after midnight and I’m taking this quiet time to catch up on today’s events. Ella has woken up for a ‘pit stop’ so while she settles back down again I’m having a quick cuppa and a bag of S. and V. crisps, made all the more special as I’m doing it by the light of the computer. She has had a wonderfully, unbroken sleep from 7.15pm, so I’m hoping she will have another until 7.15am. Somehow I don’t think so though!
We have had a good day today, even though we had a very restless night last night. There were times today when I thought I would fall asleep on the spot! They were only blips though, and a good sit down and restful evening soon pick you up again don’t they? We started the day early, with a bed wash for Ella, so that when Linda arrived we were able to get her out of bed together.
Ella had been looking forwards to Linda’s visit, because they were going to make a special ‘crown flan’ together. True to her word Linda brought all the ingredients to keep the three of us busy for an hour….and the results were magnificent, as you can see from the photos, not to mention great to eat too.
Soon after Linda had left Liz arrived for Ella’s lesson, with another treat for her….. home grown raspberries. How kind it is of everyone to remember Ella, even when they are off duty! We spent almost another hour talking about fish and looking at pictures of them, ready for Ella to try some drawings to make a wall display of. Our underwater adventure story will have a super background when it is displayed then. Just as Liz was finishing Sam and Mummy arrived and that added a whole new dimension to the fish book, as Sam chatted away about the pictures. It helped motivate Ella a little as well.
Liz left and who should arrive? Yes the physio. Ummm. We had to have a bit of negotiation before Ella set off on her walk to the nurses’ station, but we got there and back, with a rest in between.
Sam had his ‘bloods’ done in here this time. He was very good as well….not one tear. Linda had come back especially to meet him, so he was feeling very proud of himself. Linda will work with the whole family, if we need her to, so today was a good opportunity to meet Sam and to think about a time that when he comes to see Ella, Linda could work with both of them together.
By the time Mummy and Sam were ready to set off home before the rush hour, Ella was really tired and grumpy, and it wasn’t long before she was fast asleep. At this point I need to tell you about the arrival of the new TV!! It came this afternoon during physio, and as we thought, it was set up level with the bed head, so that the child needs to be a contortionist to be able to watch it in bed. There is no doubt about it….there has been no thought, what so ever, put into the planning side of making this a child friendly environment. I don’t think it’s just me, is it, who thinks a TV should be facing you when you watch it? Anyway, it’s facing us now…..I moved it, to where ours was, and at the moment it’s plugged into our ariel. They are coming back tomorrow to try and fix it up in a place facing the bed. There aren’t many places, facing Ella’s bed, to choose from as you can imagine…..so we’ll have to wait and see what they come up with!
I’m going to close now on a much less grumpy note…..we hope you enjoy the photos of Ella and Linda making the ‘piece de resistance’.
Nite nite and lots of love to everyone. Thanks for all your loving prayers and support, as usual.
Ella and Annette.xx
PS Hi Janet....great to know you are still there. I've some ward news to catch you up on. Jo( Sister jo) finishes on Thurs to have her baby....can you believe it? and Kelly is expecting now too. I was showing Linda some old photos yesterday and she recognised you!x
Hi Annette & Ella,
ReplyDeleteWow how time flies and nearly a half term over.
I remember Linda doing a simular flan with another patient at the RMCH it tasted fabulous aswell.
Glad you have got a telly now, I don't know how they coped before our time, mind you, yes the kids played out alot and the family numbers were bigger if you know what I mean Ha Ha
Gosh that's gone quick, Jo finishing for maternity leave and wow big congrats to Kelly. Does she know what she's having?
All my love & prayers to Ella & Sam
Thinking of you all
Hugs & kisses
Janet XXXXXXXXXXXXXXXX