Day +47 and +48
Hi everyone. I’ll jump in straight away with yesterday’s visit to Booth Hall shall I?
Well, it was an early start, with all fingers and toes crossed that the ambulance booked to take us would arrive on time. We were all ready and there it was, bang on. Procession number? I’ve forgotten ! Ella in the lead, lay strapped onto the trolly, being ‘pushed and pulled’ by two paramedics, followed by Sally and myself with the luggage. I don’t know …………..us girls when we go off out for the day!
The journey isn’t too far actually, and we were on the ward about 10.15am, and what a ward. A busy general ward, full of lively noisy children….so different from here on our little island! We were put into a cubicle, so at least we were lucky to have some privacy. We spent the waiting time snoozing mostly and watching Matilda. Then suddenly Ella had a burst of energy, and once encouraged by their play specialist, she painted and glittered a photo frame. Ella ‘went down’ about 3.45pm, and was back on the ward by 5.30. We were all fed up by then, and I can’t believe I’m saying this, but we couldn’t wait to ‘get home’. We had to stay though for a couple of hours, to make sure Ella was recovered from the anaesthetic, then our transport was called. To get us back by ambulance the staff have to ring 999…crazy isn’t it? Anyway, at 9.30 we were home and ready for a cuppa. Results on Thursday, following a meeting with Dr Wynn.
Today, Wednesday, has been a very quiet day, in comparison to our day out. I came up to the unit just before 5.00am and The girls were both fast asleep, and stayed that way until easily 8.30am. It gave me time to catch up on some reading.
The main input from everyone today has been involved with getting on top of the pain control, which still isn’t right for Ella yet. Dr Wynn has said this is his priority at the moment. The morphine has been upped again today and tomorrow Ella will start trying a new pain killer through her line.
She has really good spells, when she is chatty and lively, like lunchtime, when she just sat up and made us both laugh, by joining in our conversation when we thought she was asleep. That was followed by a request for mashed potato and carrot, with toast on the side.! The idea of eating is much more appealing than the actual eating though. She only nibbles, but she does enjoy those nibbles!
I had promised to make some soup for tea….you’ve guessed it…potato,carrot and parsnip…so Mummy went off this afternoon to hunt for lactose free stock cubes, just to ‘tasty it up’ a bit. It worked beautifully.
Well, Sally and I are on our second washer! The one in the igloo is broken now as well. What a mess. Hopefully the Family Care Team will be able to get it fixed quickly. At the moment it’s winging its’ way ( our washing that is), to Southport in Ian’s car boot. Thanks Ian.
At the moment Ella is fast asleep, thumb in and giving Lizzie a good ‘hair do’. Sally and I have just eaten our tea and ‘Corrie’ has just ended. It gives us time for a cuppa and a chat before it all begins again. ‘Nights’ have become the new ‘days’ for us.
Night night and lots of love to everyone, especially Uncle John for his birthday on Monday. Thank you for all your prayers and love, as usual,
Ella, Sally and Annette.xxx