Day +27 and Day +28
Well first of all I have to apologise for the missing blog for yesterday. We just ran out of steam I’m afraid, no more so than Ella.
Yesterday began well, with us looking forward to a visit from Andrea and June. Ella and I had spent a really good night together, and Sally had retired to the igloo for a proper sleep.We were up and getting ready early, and deciding on our pj’s for the day. Dr Wynn was delighted with her good night. He decided to change the treatment slightly and the morphine was tweaked a little and reduced by 0.5.
I had only nipped out for a quick visit to the igloo to check it over for ‘damage’ and when I got back Ella was dressed in her new Juicy ‘tracky’ complete with make up! She was the talk of the unit.
Our visitors arrived, lovely to chat with them. Andrea couldn’t resist a quick massage of Ella’s feet! Then nurse Andrea rushed in to tell us that Ella’s new ‘hair’ had arrived. Great anticipation as Ella opened the box…..would she like it? wear it? hate it? We needn’t have worried, she did like it and put it on. I went to tell her nurses and they all shot in to see how she looked. She really looked very shy and guess what she did first? Pulled a strand to twiddle in her ear while she sucked her thumb. At last……hair to twiddle. We have decided to call her ‘Lizzie’ (named after Auntie Diannes’ new hair do.)
The afternoon brought mixed fortunes for Ella. She was tired and had tummy ache, and by the time bedtime came round she was really fed up. Auntie Rachael came to stay, and at last at midnight, when I tiptoed out, Ella was more settled for the night.
That leads us on to today. When I got up here it was to find Lizzie in bed with Ella, and Rachael catching some sleep in her own bed. Oh dear!
Anyway we moved on……..and Ella bravely opted to move on to the bed/settee for the day. Eventually it proved to be just the right thing to do. After choosing for it to be a spotty day, Rachael quickly got ready for ‘the visit’. He didn’t appear! Sven, the registrar came instead, examined Ella and pronounced her to be doing well, and to keep up the good work. Which is just what we did.
A tired and floppy Ella was snuggled and cuddled until Auntie Margaret and Reggie came, bearing ‘more cheer you up’ goodies. By that time she was ready to join in a little, especially when she was treated to the vision of Reggie wearing Lizzie. Even Ella couldn’t resist a smile……….well a grin really. Simon coming along really sealed it. She was wearing Lizzie and on good form, to show him how to play on a new underwater Wii game.
This room is definitely not big enough! We need an extension! I mean Annabelle’s drawers alone take up lots of space…………
So with that thought in mind Reggie and I set off to find more ‘storage solutions’ and a few other things, like hairclips!!!!!!!! We landed back with 3 more boxes, which are already filled and a selection of hardware for Lizzie!
Things got even better for Ella when she and I were sitting chatting. The Radio Lollipop team arrived to give Ella her present, for winning the colouring competition again. She was soooooo delighted, it really cheers you up to see that little face, radiant. What good work they do, for all the little people here.
Sally is back now and a peaceful Ella is fast asleep. The night ‘team’ have taken over and Sally and I are having a quiet cuppa! ( well in my case a cuppa and a ‘fly cemetery’).
Dr Wynn came at lunch time today, and once again reassured us that Ella is doing ok, and that she is responding to the treatment, if slowly.We’ll get there!
Night night to everyone, with our love, thanks and best wishes.
Sally, Ella and Annette.xxx
PS Thanks Simon. After weeks of wasted 'dongle time' I've learned how to write and copy the blog on Word and post it on line afterwards.
PPS Sally is working herself up to starting the cross stitch again..............