Day +38

Hi all, Rachael, Ella and Annette signing in!!
Starting with last night, Ella had quite a peaceful sleep with only a couple of bouts of tummy ache and 1 lollipop! Slightly more potty visits, but definitely much improved than last week!
I arrived onto the unit ready and set for the day, hair straightened, make up on, bag of beauty tricks in hand, only to find daddy and Ella fast asleep!
Clock watching for an hour and still no movement, I gave in and caught up with the blog (sorry Ell’s missed it for a few nights, oops!), still no movement, read a magazine, not a sound, had a cuppa, no twitching!. Found a very interesting article in ‘the mag’ though, from a couple who live in Central Ave, Southport! If only someone had been awake so I could show them!!!
Eventually, 9am, 2 and a half hours later, Ella rose, closely followed by daddy!
Great start to the day, Ella was chirpy, daddy was lively, beds changed, Ella on the couch, ready for another snooze!!
Must definitely be catching up on all those missed zzzz’s from previous nights.
Quite a lazy day all round really, but we did manage this morning to make Sally Ann and Nick a gorgeous present. (bet you cant guess what, or who, it is?? Hope you like them!)
Auntie Cheryl, Uncle Mark and Megan arrived lunch time, so I left the grown up’s and Ella to it and went for a walk with Megan. Not long into our stroll, Megan asked for daddy, so I began singing twinkle twinkle, only for her to reply ‘I don’t like that one’!!! (she’s only 18months, the same age as Sophie, who hasn’t muttered a word yet!!) back down the corridor, Megan greeted several people before racing towards the fish tank saying,’fishies’!!
Back on the unit she then identified balls, said ‘I cant do that’! and finished it off with counting to three!! Child genious in the making!!!
Ella had another snooze, just in time for Dr Wynn to arrive, he was generally ok with progress, and said that at some point this week, he would take Ella back to theatre and put a camera down, to see the extent of how far the gvhd has reached. After this, a decision can be made about when Ella can start to SLOWLY eat again.
Physio is next on the agenda, Ella has lost muscle tone understandably, and has got very definite nobbly knees and floppy feet!! So watch out Ella, whilst you were snoozing there was a mention of an exercise bike!!!
Daddy went home, Ella woke up, quick, out with the nail varnish and diamonds!!
Half way through French polishing, Ella was very hungry and upset, so Dr Wynn allowed her a ‘little of something’ after much choosing, nik naks were the winners! Each stick was lovingly sucked and savoured!
We were still titivating when nanna arrived back from her ‘night off’, jealous of course she had missed out at the beauty salon, AGAIN, next time I promise!!
Tea was already prepared tonight, another of Ella’s pizza’s, and special sauce! Yum, yum!!
Time for the ice dancing and our favourite Wild At Heart. Ella is snuggled down, I am writing this, and nanna is watching the telly, something’s not right here, shouldn’t it be the other way round? Think there'll be a race for the igloo tonight, infact, bye!!..................................................................................................................................................................................
Lots of love to everyone and our thanks as usual for your prayers and loving wishes.
Ella, Rachael and Annette. xxx