Day +26
Today has been up's, up's and more up's........................shall we leave it there? No, we won't leave you in suspenders.
Our day began as per usual, the girls in bed and me arriving to wake them up. Sally dashed off for her shower, only to find the water cold, so decided to wait a while for it to warm up. We got chatting to nurse Niki and the next thing was Mr Wynn arrived, plus his team, to find Sally wrapped in a towel and Ella putting Nanna's make up on for her. ( by the way, Niki had the biggest grin on her face today, she got engaged last night and brought her ring in to show us.) He backed out discreetly and came later.
He is very pleased with Ella's blood results, but explained once again that because of Ella's history and the seriousness of the problem she has now, progress will be slow but that we are heading in the right direction. Ella has GVHD which means that the donor cells and her own cells are fighting for supremacy. The treatment is to use very strong drugs to suppress Ella's and fool them into accepting the donor cells as her own. It is a good thing to have a touch of GVHD at this stage because a recurrence of it is more unlikely. Ella is just very unlucky to be going through a very bad time. Having said that, she had her best night for a long time, and this showed in her wellness today!
After a quick 'wash and lick' it was one activity after another. She has really kept us on our toes...........both with her chatter and her cheekiness! We have had lots of visitors today as well, so they have added to the excitement. ( thanks Dianne, Kate and Atsoi).
Daddy and Sam came today as well, in between the girl's visits, and Ella was having a quiet moment. Suddenly she jumped up off the bed/settee, unplugged her monitors and headed for her bedside cabinet. What do we keep in there but................cake mixes. Ten minutes later we were all involved in making chocolate cakes! Twenty minutes after that there were 12 chocolate buns complete with 'choccy' buttons on top. Bless her...........she didn't ask for one............but did look rather longingly as Sam took some home and the rest were shared out too. She deserves the biggest treats when this stage is over, she really does.
Mr Wynn was extremely pleased with Ella's progress again today, when he called for his afternoon visit. When he came she was plaiting 'scubies', so that has to be a good sign doesn't it?
Teatime brought more things to do, colouring for the next Radio Lollipop competition and gluing sparkles onto belts. Phew! By the time 8.00pm arrived she was really ready for bed and it only took a short story to complete her day.
Sally and I are sat here, having just finished eating a homemade 'fly cemetery' each, thanks Auntie Dianne, and wondering if we should have a second. I said no, but you know Sally, she has always been headstrong.
We'll say goodnight and send lots of love to everyone.
Night night, Sally, Ella and Annette.xxx
PS Ella sends her love to Lucy for her lovely presents. She is saving the biscuits until she's able to eat again. And big hugs to Grace hope you're feeling better. Xxxx