Day +203 ( Thurs 27th)
Hi and welcome back to us here. We have had a very successful day again…hope you have too.
Ella slept well during the night, with just the usual waking times to have one of her 8 pillows adjusted. Yes 8!!!!!!! We just buy the cheap, soft squashy ones from Tesco, and then Ella can make a nest with them. They are always in the wash of course, but as long as they don’t go in the dryer too they are ok.
We were expecting Linda, from the Rainbow Trust this morning at 11.00am, so Ella wanted to have a bath before she came and be all spruced up ready. The bath was another success….but very relaxing. So much so that Ella had given her all and fell asleep for some of Linda’s visit. They did make some nice things together though and Ella enjoyed it.Next on the activity list was a visit to physio, where Ella whooped me at bowling. She scored 6 strikes in a row, and then finished on a strike. We ended the afternoon with a snooze, which wasn’t surprising really.
Sally has taken Sam away for a couple of nights, to Camelot, so there has been a lot of phoning back and forth, to find out how they are going on. I n fact the last call was about 9.30pm and Sam was still up and bouncing around. Ella takes it all in her stride….she is a real star. We celebrated in a different way. We shared a prawn sandwich, a bag of prawn cocktail crisps and a Yorkie. Ella is really funny…..she feeds me the sandwich, but I have to eat all the crusts first, then the filling. It’s really hard to do that without a drink, but we can’t have a hot drink in here, so I always end up with hiccups. Ella, meantime, nibbles carefully on half a prawn and then discards it, in case it gets stuck in her tube!
It’s 10.30pm now and it looks as though Ella has settled for the next hour or so. Her PCA is on ‘lock out’ for 45mins now, so she is going much longer between each infusion. It has worked very well so far, and it means that she isn’t requesting it every 15mins, as she was up to 3 weeks ago.
We’ll say goodnight then, and hopefully speak over the weekend. Daddy is coming tomorrow night and is staying for 2 nights, so I guess it will be Sunday before I’m back. We hope you all have a super holiday weekend.
Night night and lots of love and thanks, for your prayers and support.
Ella and Annette xx
PS We are using bathtime tomorrow as our physio and Ali is bringing along some bathtoys!
PPS I had a 'run in' with the service provider here at the hospital, this morning. Our lovely cleaner, Joan, had to apologise because she didn't have a mop to use...so couldn't mop our room. I saw red of course and made a VERY pointed phone call to complain, and ask why my Grand daughter's room was not being mopped out ?The manager was up here in less than 10mins with new mops, and then when he had gone Joan told me that he had blamed her, because she had told me they didn't have mops to use. He had expected her to just carry on and not say anything. Didn't he think that I would have noticed if the room hadn't been mopped? I can't wait for 'round 2' if the same happens tomorrow!!! Watch this space. This eclipses the TV and food complaints by a mile, don't you think? Just what I need to get my teeth into!x