Day 202 ( Wed 26th )
Here we are again, after a long week of silence……from us to you anyway. I have been in Southport, with Sally, looking after the troupes back there, while Rachael has been here with Ella. Then Daddy did his usual weekend night, and then Mummy came back on Sunday to take over, until today, and now I’m back! Did you manage to keep track of all that? We struggle sometimes …….especially in the middle of the night, when you wake up and can’t remember where you are!!!!!!
Ella has had a good week though, so that is the main thing isn’t it? She has been much more active and wants to join with all the special things which have been organised for her. She has struggled with a rash, this week. The Drs haven’t got to the bottom of it, but she is having treatment for it, which seems to be helping. We are still waiting for the results of the scope. I know that there has been some cooking going on….with Emily and the OT’s and today something very special happened. Grace came to see her. She was so excited yesterday, when she phoned to tell me. By the time I arrived today they had had their nails painted, had eaten a chocolate fondue and were watching a DVD.
I have got to tell you about another big step forward! On Monday Ella had her first bath!!! Sally rang to tell me, and then later Ella rang and we played the ‘ GUESS WHAT I DID TODAY?’ game. I was really delighted for her and for Sally. The first time she has been in the bath properly for 7 months. I think it only lasted about 2mins, but it was a success, and it obviously gave her lots of confidence for tonight’s bath. Ella has a specially designed bath, with a seat and a board across it….which both take a bit of manoeuvring when you are still attached to your lines, but she had a lovely time tonight and was in there for a good 10mins. I had a good look for bath toys before I came, but the best I could do were some brightly coloured beakers. For tomorrow’s session Joanne suggested a few syringes….great idea. I think I can guess who’s in for soaking can’t you?
I’m going to finish early tonight, or at least try to. Ella is sleeping soundly, so I should take this opportunity while I can, but things keep popping into my mind. For example, I haven’t told you about the meeting last Weds, when everyone concerned with Ella’s care, both now and in the future, had the chance to listen and join in discussion. Andrea and June came along, and they brought Heather and Sam with them. They had a lovely afternoon playing.
So, night night from Ella and me, we’ll speak to you again tomorrow and for now we send you lots of love and thanks, for your special care and concern.
Ella and Annette.xx
PS It was lovely to see you both today, Grace and Sam.
PPS I have decided we have lived long enough without a TV….so I’ve bought one!!!!!!!! We haven’t got an ariel of course, but at least we can watch DVD’S on a proper screen.
PPPS Don’t buy the ‘Hang Man’ game from Tecso….it’s much easier with pencil and paper, trust me!!