Wednesday, 4 February 2009










Day-1, 9th day of conditioning


When I peeped through the window this morning Ella was still in bed...awake.....but resting, and Sally was too. This told me a lot about their night. Anyway, we all transferred to Mummy's bed for cups of tea and biscuits, Ella managed two cream Hobnobs and Mummy and I the rest. (umm)


We swapped stories about our nights and I told them about my shower and how I found out too late that I didn't have a towel. About padding ,dripping down the corridor at 6.00am to the shared cupboard to look for a hospital towel, and praying that Harrison Ford wasn't padding in the opposite direction. And about the two postage stamps I found, which didn't actual dry anything but exfoliated beautifully.


Ella's immunology nurse,Barbara, came along to see her about 9.30, just as Sally's phone rang. It was Rachael....and obviously from Sally's voice something was wrong.She had run out of petrol on the East Lancs but had managed to pull off into an industrial estate. "Mum come and get me!"Fortunately Barbara is local and drew me a map! any men reading now look away..........it went over the page.......but I knew what she meant. I did find her eventually in Homebase carpark, where we got her going again. We were soon on the ward, with Auntie Rachael lugging in two great big bags of new craft activities, including a potter's set, complete with wheel. Naturally it's been put to the back of the pile, until Daddy's free!


As the morning progressed it became apparent that there would be big changes all round today, both in Ella's treatment and in her condition.


The line which we hoped would be down today doubled and later unbelievably doubled again. Ella has been very drowsy and hasn't felt like doing much at all. She did brighten up a little when she got her new baby Annabel and positively smiled when Daddy showed her how Sam's new remote control car can go along the ceiling without falling off. When it did fall off there was a hint of a laugh!


Ella drifted in and out of sleep all day really, so we have tried to generate a more calm atmosphere, even little Sam joined in by giving big sister a lovely foot massage ( he's learned a lot Andrea ) while Rachael did some finger knitting.


As I say the lines have quadrupled, so that by tonight there are four drips going all at the same time. Two with feeds to give enough calories etc whilst Ella isn't eating and and two supplying drugs. Sally has been wondering how three of us, and the stand, will squash into the toilet.



As you can see from the photos Ella is well and truly hooked up as she snoozes tonight.





This picture is from Ella's portfolio of makeup...beware., and Ella's tree which she can see from her window even when she is lay down.
It's very late now so we are going to close,Sally has struggled hard to get the photos on, hope you enjoy.
It's great to hear all your news too.Night night form Sally, Ella and Annette

8 comments:

  1. Hi there E,S and A, all good news and great to read. I have a big surprise for you Ella - a little friend really wants to send you a message so here goes.
    Um, well guess who this is Ella - no go on guess - no not Sam,no not Jack, no go on have another guess I'm your bestist little friend.
    --?
    --?
    Its Bumpy blog dog! ha ha wuff wuff, its really me! Auntie Margaret said if I was really good I could write to you sooooo I have been reallllly verrrry goooooood and here I am sitting on her knee and tapping away. he he
    Guess what, I have a new game to play in the garden! Its called bark at something behind the shed wuff wuff. I'm not sure what I am barking at but its good fun. Auntie Margaret doesn't know what it is either and says she isn't going to go behind there to find out, well not at the moment, ha ha wuff wuff.
    Auntie Margaret threw a few snowballs at me the other day, they were very soft and when I shook myself the snow went all over her wuff wuff, but the snow has all gone now. There are a few flakes coming down but I don't think we can play snowballs. BUT I think if I don't stop chasing and chewing the little rubber ball I dug up yesterday it might just be bouncing off my bottom quite soon wuff wuff.
    I hope you are very happy to hear from your little fluffy friend and Auntie Margaret sends you lots and lots of love too.
    Lots and lots of licks from Bumpy bogdog wuff wuff XXXXXXXXXXX

    ReplyDelete
  2. Hi Girls.
    Your blog never fails to make me chuckle. I especially liked the tale of Annette on her towel hunt! Bet Rachel was in a flap when she broke down - she should be a blonde!
    The pics are great - specially the one of Ella with Lily Savage.....
    Looks like Bumpy has been busy too whilst you have been away Ella. He's very good on the computer isn't he? Sounds like he's keeping Auntie Margaret on her toes.
    I hope you got some sleep Ella with all those lines going ( did you all fit in the loo then?)
    Thinking of you all, love June and Heather xxx.

    ReplyDelete
  3. Hi Ella it me grace just checking if things are
    going ok, I herd that u are haveing the transplant to night hope things are going to be
    allright I would just like to wish u good luck and u no I am your BEST friend . Lots of love grace and mum.XXXX

    ReplyDelete
  4. Hello there bloggers! (that includes you Bumpy Blog Dog!!). Nice to know there's a new kid on the "blog" block. How are you today Ella? I don't know anyone as brave and courageous as you because you have done really realy well with your prep medicines. We are constantly thinking of you Ella and wish you very well with your transplant. Nana continues to tickle us pink with her tales, and what a numpty Knickers Aunty Rachel is for running out of petrol!! Good job you were nearly there huh? How is Sam, is he coming to visit lots? And how is mummy and nana, I miss your smiling face in the school playground Sally!!

    Got to go,chops are burning!!

    Lots of love always

    Jules and Isobel (who sends her love too).

    ReplyDelete
  5. Just to say we are all thinking of you at school. I gave everyone your news at the staff meeting today. We ALL think you are very, very brave. Good luck with the transplant. I am a bit worried about Mummy, Nanny and Auntie Rachel and the things that they are getting up to. You need to take charge of them.Hope you all get some sleep tonight. Take care. Mrs R X PS I have told Mrs Hodge about all the work you are doing!

    ReplyDelete
  6. Ta for the photo's - still thinking of you all loads and telling the story of a wonderful brave girl wherever I go. Love to all from us all. Petrol, cars on celings and towels LOL. Cannot wait to read the book and watch the movie when it its published - carry on girls???

    Love to all Martin

    ReplyDelete
  7. Hi Ella, we love your pics, especially the one of you looking gorgeous wearing your make up! When you're feelin well enough you'll have to come into school with your nana and do mine?! You really are a brave little girl Ella, even though you're feelin poorly you still manage to keep smiling. We really enjoy reading all about what you've been getting upto, so keep writing, you keep us giggling with all your antics. Love to all, you are all amazing! love from Jane Tom and Sean xx

    ReplyDelete
  8. Hi guys, how are you all holding up? Things getting a little tougher but you are still managing to get through with a smile on your face..makes us mere mortals feel very humble! Funny how Rachel failed to mention her petrol mishap this afternoon,she did look a bit frazzled tho!! But tea smelt nice!!And my meatballs a la aunty rach were very nice,thankyou,we,ll see you on masterchef yet! Sam was very good having his globbies today Ella, he didn't try to hide or anything! I think i will go earlier next week tho so i can play mario karts with him!! Remind mummy to send me your webcam address and I will try to set ours up too,I'll get Ozzy to wave to you and he can be a blog dog too. Lots of people asking after you and wishing you lots and lots of luck with the transplant, me too of course, and a very big hug,
    Andrea xxxx

    ReplyDelete