Days +236, +237 ( Weds 30th, Thurs 1stOct)
First of all ‘white rabbits’ for today and then it’s another hello from our sauna. Phew!!! It’s 10.15pm on Thurs evening and it is STIFLING in here. Wish that man would get his finger off that knob.
Anyway, down to our news. Ella had a wonderful day yesterday. She was up and alert early, after what I thought was the hottest night I’ve spent for a long time. But it seemed to do Ella good, and after an early wash she was ready for the physio at 10.00am. Our little star got out at the far side of her bed and walked around to this side, to get onto the BGC. We helped and encouraged all the way of course, but we got there. She sat out all day, and was still out when Grandma and Grandad arrived later in the afternoon. By that time Ella was asleep, but she soon woke up and that started a super couple of hours. Ella wanted to go for a walk out to the shop, (with ALL of us) so off we went….Ella in the chariot, Grandma,Grandad, Mummy, Nanna and nurse Ali pushing the drips. The shop is just about big enough to fit us all in! Needless to say we came back with a bag full and a very happy Ella. Only one blip…..Ella’s lines are being naughty, so she is having to have bloods taken from a vein again, whilst they try to clear the lines. Results are ok though, and the ENT Dr is pleased with her ear. She needs it draining again later in the week.
I decided to take a trip home last night and leave Sally to it over night. My day at home has been very nice….lunch with Reg…a spot of shopping to buy Ella some new tops….and a 3hr journey back!!! More about that later.
Ella and Sally’s day has been more difficult, with Ella not feeling too good today. She told Sally quite firmly that she wanted a lie-in and she stayed asleep all morning! Ella has sat out today though, for a little while. She’s sleeping very peacefully now….stretched out and completely relaxed. Lovely! (Some of the medication she is on is very powerful stuff and ’Dr Denise’ decided at teatime to leave one particular one off, for tonight and tomorrow).
Sally and I have swapped over again tonight, because she and Rachael are taking the rest of the brood to Flamingo Land, for the weekend. That meant I needed to set off about 4.00pm. I had the journey from hell…..
I blame ‘Sally Traffic’ on the Steve Wright show BBC radio2, myself. She said there was a massive hold up on the M62 and to avoid it. Well, I and all the other motorists in the north west did just that, and we all met up at the end of the East Lancs instead!! Then I got utterly and completely lost in Manchester. Every person I asked directions of didn’t come from M’ster, and nobody was able to tell me how to get to one of the largest hospitals in the North West! There are NO road signs to tell you and as it got dark and I was passing the MEN Arena for the 5th time I was beginning to wonder if I’d ever find it. Somehow I did and I landed at 7.30pm. Which just goes to show ladies….we don’t need sat navs do we?
I’m going to finish now that I have brought you up to date. Daddy and Grandma are coming to stay Frid and Sat night, so I’ll have to update you on Sunday or Monday. I’ll be heading back to Southport tomorrow night….if I can find it.
Night night and lots of love to everyone. Thank you, as usual, for all your loving thoughts and prayers.
Ella and Annette.xx
PS Ella was sooooooo delighted and excited to get your parcel Becca. To get something through the post was just brill and to find it was bubbles!!!!! We were all allowed a blow and Ella is using them as a physio exercise too!!xx
PPS Welcome back Sam and Grace.xx
PPPS What am I going to do with myself at home alone, for two whole days?x
Thursday, 1 October 2009
Wednesday, 30 September 2009
Days +234+235 ( Mon 28th, Tues 29th Sept.)
How can it possibly be 2 whole days already, since I last blogged. We seem to be going on fast speed here, at the moment. Mind you, part of the problem is that we are not getting a proper connection. It is very slow and a bit hit and miss. I just hope that the dongle isn’t on it’s last ‘dong’! Any way I’ll give you an update on the last couple of days.
Ella has slept well during the last 2 nights, and that has meant that she’s been awake earlier and more ready to join in earlier….so everyone gets a better response. Yesterday saw the return of Dr Wynn, who arrived early morning, with his entourage in tow. He was very pleased that Ella is stable once again, and he hasn’t got any plans to change anything right now.
Ella, in the meantime, tries her very best to live life, with determination and courage, and to enjoy our days. She wanted to go for a little walk yesterday, but it didn’t work out that way….she fell asleep when there was a ‘staff slot’ and when she woke up there was no.one to take us out! Today was a different story….we went out about 5.00pm to the shop in the maternity hospital. It must stay open later, thank goodness, and we had a great 'shop'. Ella bought a book ( cookery….finger foods) and 2 nail files, and I bought 2 iced lollies( to cool us off ) and a pot noodle. What does that tell you?
We had visitors today as well. Firstly Rachael, Jack and Sid came to see us. Who is Sid you may ask? Well, Sid is Jack’s class mascot and he has been soooooooo excited waiting to bring him to see Ella. They had a little play together and then it was time to turn around and head back home. They came on the train( car trouble) and Sally went back with them, for a night at home with Sam.
Just as they left Andrea and June arrived, with treats of course. Ella was asleep, of course, in the BGC , but after a while and a shy beginning, she woke up and we enjoyed a lovely afternoon together. In fact, we did what all ladies do when they have a gooey choc cake to eat…..we had afternoon tea. By now Liz (teacher) had arrived and she joined us, so Ella had a speaking and listening lesson, as she served slices of cake. Very English, don’t you know!!!
I had already asked if Ella’s physio session could begin to include some walking again, so when Jan came along she is quite happy to do that, now Ella is getting out of bed again. She’s going to have a play with the bed too. She has always said that these super duper new beds can be made into a chair , and in fact get someone into a standing position…..so she is going to have a play tomorrow……..cameras at the ready!
I’m going to finish now and settle down for the night. It is like a sauna in here. Goodness only knows what has happened to the air system. Someone somewhere has touched a knob!!!!!!!!!!!!! Ella and I are melting.
So, night night from we two. We send lots of love and our usual thanks for your loving support and prayers.
Ella and Annette.xx
PS Thanks for your messages…..keep them coming.x
How can it possibly be 2 whole days already, since I last blogged. We seem to be going on fast speed here, at the moment. Mind you, part of the problem is that we are not getting a proper connection. It is very slow and a bit hit and miss. I just hope that the dongle isn’t on it’s last ‘dong’! Any way I’ll give you an update on the last couple of days.
Ella has slept well during the last 2 nights, and that has meant that she’s been awake earlier and more ready to join in earlier….so everyone gets a better response. Yesterday saw the return of Dr Wynn, who arrived early morning, with his entourage in tow. He was very pleased that Ella is stable once again, and he hasn’t got any plans to change anything right now.
Ella, in the meantime, tries her very best to live life, with determination and courage, and to enjoy our days. She wanted to go for a little walk yesterday, but it didn’t work out that way….she fell asleep when there was a ‘staff slot’ and when she woke up there was no.one to take us out! Today was a different story….we went out about 5.00pm to the shop in the maternity hospital. It must stay open later, thank goodness, and we had a great 'shop'. Ella bought a book ( cookery….finger foods) and 2 nail files, and I bought 2 iced lollies( to cool us off ) and a pot noodle. What does that tell you?
We had visitors today as well. Firstly Rachael, Jack and Sid came to see us. Who is Sid you may ask? Well, Sid is Jack’s class mascot and he has been soooooooo excited waiting to bring him to see Ella. They had a little play together and then it was time to turn around and head back home. They came on the train( car trouble) and Sally went back with them, for a night at home with Sam.
Just as they left Andrea and June arrived, with treats of course. Ella was asleep, of course, in the BGC , but after a while and a shy beginning, she woke up and we enjoyed a lovely afternoon together. In fact, we did what all ladies do when they have a gooey choc cake to eat…..we had afternoon tea. By now Liz (teacher) had arrived and she joined us, so Ella had a speaking and listening lesson, as she served slices of cake. Very English, don’t you know!!!
I had already asked if Ella’s physio session could begin to include some walking again, so when Jan came along she is quite happy to do that, now Ella is getting out of bed again. She’s going to have a play with the bed too. She has always said that these super duper new beds can be made into a chair , and in fact get someone into a standing position…..so she is going to have a play tomorrow……..cameras at the ready!
I’m going to finish now and settle down for the night. It is like a sauna in here. Goodness only knows what has happened to the air system. Someone somewhere has touched a knob!!!!!!!!!!!!! Ella and I are melting.
So, night night from we two. We send lots of love and our usual thanks for your loving support and prayers.
Ella and Annette.xx
PS Thanks for your messages…..keep them coming.x
Sunday, 27 September 2009
Day 233 (Sun 27th Sept)
Hello again and welcome back. It’s just like yesterday really….I’m sat here, it’s about 5.00am, in the peaceful atmosphere of Ella’s room, listening to zzzzzzzz’s from Ella and Mummy and thinking about the news to tell you today.
Ella had a much better day yesterday….so that is the first thing to say. In fact she was sat out in the big green reclining chair ( I’ll tell you about that later) all day. We began with an early start, for us that is. Ella had her hair washed and we chose something pretty to wear and then she sat out and did some painting with Sally. ( it’s the 1st time she’s sat out for over a week.) It was great to see her engage in an activity like that.
Sally then disappeared to get us some lunch….on Sunday the canteen has a reasonable roast. WELL, when she got back there was steam coming out of her ears and she went on to explain what a performance she’d had trying to get satisfaction for the £16 pounds we were paying for 2 dinners and puddings etc. I hear that the whole queue started to rumble too….so maybe the ‘powers that be’ will have enough food for everyone next week….cooked on time….and not served in the smallest take away poly/dish in the world with everything piled on top of the other!!!!
After lunch we were looking forwards to X Factor….Ella was all ready….button pushed…. Comfy pillows etc. Then the beeps started and in came a flurry of angels, all helping each other out to get the pressures correct on Ella’s pumps. The only problem was, for us, that they were stood right in front of the screen. We could hear but not see! By the end of the programme we had given up and Ella had returned to bed to watch Grease….in between the beeps. Mind you she was tired, so a little snooze was in order.
We had a lovely surprise visit, from Uncle John, a little later. We had another trip to the canteen to get some tea, so that Ella could ‘help’ Uncle John to eat it….yes a lovely visit.
Did I tell you about the BGC ( big green chair?) Well, last week Jo, transplant co ord nurse, took pity on us when 3 of us stayed over, and she found us a reclining bedside chair, so that we can be closer to Ella during the night and even get some sleep. We are the only room to have one, so don’t tell anyone will you? I think eventually all the rooms will have one…but for the moment, in our case, it has made a great difference to Ella, because she can see us during the night and hold hands etc AND it’s comfortable!!!
I’m not sure what’s lined up for us today yet. I know Liz will be coming, and the physio and all the other usual, weekly activities we have.I think we may have some visitors too….Grandma and Grandad are back from holiday, so I guess they will be coming along very soon.
I’ll close now and get this posted off. It will be coming light soon and I want to have another cuppa before the ward starts to be on the move. I’ve got to run the gauntlet of crossing the bridge, to get back to the dorm.,in my spotty pj’s yet. It’s not too bad at the weekend, when the place is empty….but during the week everywhere is heaving from very early morning.
Night night from we three. We send you lots of love and our usual thanks for your prayers and loving support.
Ella, Sally and Annette.xxx
Hello again and welcome back. It’s just like yesterday really….I’m sat here, it’s about 5.00am, in the peaceful atmosphere of Ella’s room, listening to zzzzzzzz’s from Ella and Mummy and thinking about the news to tell you today.
Ella had a much better day yesterday….so that is the first thing to say. In fact she was sat out in the big green reclining chair ( I’ll tell you about that later) all day. We began with an early start, for us that is. Ella had her hair washed and we chose something pretty to wear and then she sat out and did some painting with Sally. ( it’s the 1st time she’s sat out for over a week.) It was great to see her engage in an activity like that.
Sally then disappeared to get us some lunch….on Sunday the canteen has a reasonable roast. WELL, when she got back there was steam coming out of her ears and she went on to explain what a performance she’d had trying to get satisfaction for the £16 pounds we were paying for 2 dinners and puddings etc. I hear that the whole queue started to rumble too….so maybe the ‘powers that be’ will have enough food for everyone next week….cooked on time….and not served in the smallest take away poly/dish in the world with everything piled on top of the other!!!!
After lunch we were looking forwards to X Factor….Ella was all ready….button pushed…. Comfy pillows etc. Then the beeps started and in came a flurry of angels, all helping each other out to get the pressures correct on Ella’s pumps. The only problem was, for us, that they were stood right in front of the screen. We could hear but not see! By the end of the programme we had given up and Ella had returned to bed to watch Grease….in between the beeps. Mind you she was tired, so a little snooze was in order.
We had a lovely surprise visit, from Uncle John, a little later. We had another trip to the canteen to get some tea, so that Ella could ‘help’ Uncle John to eat it….yes a lovely visit.
Did I tell you about the BGC ( big green chair?) Well, last week Jo, transplant co ord nurse, took pity on us when 3 of us stayed over, and she found us a reclining bedside chair, so that we can be closer to Ella during the night and even get some sleep. We are the only room to have one, so don’t tell anyone will you? I think eventually all the rooms will have one…but for the moment, in our case, it has made a great difference to Ella, because she can see us during the night and hold hands etc AND it’s comfortable!!!
I’m not sure what’s lined up for us today yet. I know Liz will be coming, and the physio and all the other usual, weekly activities we have.I think we may have some visitors too….Grandma and Grandad are back from holiday, so I guess they will be coming along very soon.
I’ll close now and get this posted off. It will be coming light soon and I want to have another cuppa before the ward starts to be on the move. I’ve got to run the gauntlet of crossing the bridge, to get back to the dorm.,in my spotty pj’s yet. It’s not too bad at the weekend, when the place is empty….but during the week everywhere is heaving from very early morning.
Night night from we three. We send you lots of love and our usual thanks for your prayers and loving support.
Ella, Sally and Annette.xxx
Saturday, 26 September 2009
Day 232 (Sat 26th Sept)
Welcome back. Just a very short update I think. It is now 5.00am on Sunday morning and I am sat in the peace and quiet of Ella’s room, thinking. Watch out!
We had a good day yesterday….not very exciting really….but a good day. Lots of positives. Ella eventually ‘got up’ and had a very short wash, just in time for Daddy’s friend, Stuart, to arrive. He brought some letters for Ella, from his little boys….lovely.
We couldn’t go out, unfortunately, because of lack of staff, so they day did seem longer. We had a visit from the physio though, and she was very pleased with Ella….who managed to suck and blow on her inhaler ‘thingy’.
Daddy left for home…a few tears all round of course. He has had a longer stay this time and Ella has got used to being a ‘Daddy’s girl’ again. We coped though and waited for Mummy to arrive. We had a VERY long wait. Poor Sally had a nightmare experience coming back on the train and ended up getting a taxi back from Salford Crescent Station ( where ever that is ) because she couldn’t get on the train. Anyway, she was safe….that’s the main thing. In the meantime Ella and I ( well me really) watched ‘Strictly’ in peace. We are saving X Factor for Sunday afternoon….when we are all awake to enjoy it!!
I’m going to finish now except to tell you about a lovely pressy I was given yesterday. A really unusual pressy….half a cooked chicken. Nicola ( our next door neighbour and dorm sharing friend) had a visit from her inlaws and they brought the chicken with them. They had too much and shared it with me. It was divine!!!!!! I shared it with Sally, of course, although she was in danger of loosing it…..another few minutes in that taxi and it would have been gone.
Night night from us all here and thanks for your loving thoughts and prayers, as usual.
Ella, Sally and Annette.xxx
PS Any ideas about using left over chicken bones in the microwave?x
Welcome back. Just a very short update I think. It is now 5.00am on Sunday morning and I am sat in the peace and quiet of Ella’s room, thinking. Watch out!
We had a good day yesterday….not very exciting really….but a good day. Lots of positives. Ella eventually ‘got up’ and had a very short wash, just in time for Daddy’s friend, Stuart, to arrive. He brought some letters for Ella, from his little boys….lovely.
We couldn’t go out, unfortunately, because of lack of staff, so they day did seem longer. We had a visit from the physio though, and she was very pleased with Ella….who managed to suck and blow on her inhaler ‘thingy’.
Daddy left for home…a few tears all round of course. He has had a longer stay this time and Ella has got used to being a ‘Daddy’s girl’ again. We coped though and waited for Mummy to arrive. We had a VERY long wait. Poor Sally had a nightmare experience coming back on the train and ended up getting a taxi back from Salford Crescent Station ( where ever that is ) because she couldn’t get on the train. Anyway, she was safe….that’s the main thing. In the meantime Ella and I ( well me really) watched ‘Strictly’ in peace. We are saving X Factor for Sunday afternoon….when we are all awake to enjoy it!!
I’m going to finish now except to tell you about a lovely pressy I was given yesterday. A really unusual pressy….half a cooked chicken. Nicola ( our next door neighbour and dorm sharing friend) had a visit from her inlaws and they brought the chicken with them. They had too much and shared it with me. It was divine!!!!!! I shared it with Sally, of course, although she was in danger of loosing it…..another few minutes in that taxi and it would have been gone.
Night night from us all here and thanks for your loving thoughts and prayers, as usual.
Ella, Sally and Annette.xxx
PS Any ideas about using left over chicken bones in the microwave?x
Friday, 25 September 2009
Day 231 ( Sept 25th Frid )
Well, here we are again, at last, at the end of a difficult week. I think I left you with Ella having a cold? Ummmmmm! What a cold. She developed pneumonia, an ear infection and other ‘ nasties’ …..all of which complicated her little life. We are here anyway, and I can tell you that she is much, much better and is beginning to sit up and take notice again.
We have had a very busy week for visitors too, as you could expect. Little brothers, Aunties, Uncles, cousins and friends have all been, to help cheer Ella up. Mummy, Daddy and I have been here all week too. At least 2 of us staying, sometimes 3….it was just easier than traipsing all the way home, only to turn around and come back the next day. Although having said that, we have each made a flying visit for the night, to ‘refresh’ suitcases and Sally went home last night, to see Sam, and is coming back tomorrow. We have decided, that for the time being, we need to have 2 of us here again. What would we do without Rachael and Reg to hold the fort at home?
There have been lots of bright moments this week, as well as serious ones. Naturally, a lot of them have been involved with food….you know us. Like the time Sally and I went along to McDonalds for breakfast, with a list as long as your arm, and then ‘sneaked’ it into the unit. Of course there isn’t much sneaking! Ella’s angels are in and out of the room all the time, and you can’t exactly disguise that McD’s smell, can you? Ella had a tiny taste of everything on the menu, so it was worth every moment. In fact, there have been quite a number of McD’s visits, now that we have found the way, through the hospital. This complete site is so huge, that you can walk along a central corridor, going through all the different departments, both children’s and adults, and end up half a mile later at McD’s on Oxford Rd!
What else have we done? Oh yes….had a ‘heated debate’ with the Head Teacher, of the school here, about the provision for Ella. It is difficult, we know that, working within the constraints of a tight budget, but there are ways of saying that without causing offence! Oh, and Ella made cakes yesterday, with Liz (teacher), who has turned out to be good friends with Ann ( cookery teacher from Pendlebury? ) and between them they have come up with some recipes to make in the microwave. So, that was a first for us all….microwaved fairy cakes. They were good, too.
I shared the dormitory with Jackson’s Mum last night. Both families are long stay, and we are next door neighbours on the unit, so it seems very sensible for us to share the dorm just between us. We watched the dancing, then it was a quick read and lights out. ZZZZZZZZZZZZZ.
It’s 6.30am right now, on Sat morning. I took over from Damian at 4.00am and since then Ella has been quite settled. The lockout time on the button has been put back to 30mins, for the time being, so she is more wakeful at times, waiting for it to be pushed!
Anyway, lots of love from us all here. Thanks, as ever, for your support and loving prayers.
Ella, Damian and Annette.xxx
PS My flowers are so beautiful Kate and Stephen. They really have cheered me up….not to mention the dorm!xx
PPS Hi to Martin and all our friends at AMC. Sorry I didn’t get back to you, Martin, I’ll definitely catch up with you this week. What’s it like to be back in harness?x
PPPS Big thanks to Auntie Andrea for taking ‘Bumbs’ for his hairdo. Did the lady stuff a cushion with his fleece? xx
Well, here we are again, at last, at the end of a difficult week. I think I left you with Ella having a cold? Ummmmmm! What a cold. She developed pneumonia, an ear infection and other ‘ nasties’ …..all of which complicated her little life. We are here anyway, and I can tell you that she is much, much better and is beginning to sit up and take notice again.
We have had a very busy week for visitors too, as you could expect. Little brothers, Aunties, Uncles, cousins and friends have all been, to help cheer Ella up. Mummy, Daddy and I have been here all week too. At least 2 of us staying, sometimes 3….it was just easier than traipsing all the way home, only to turn around and come back the next day. Although having said that, we have each made a flying visit for the night, to ‘refresh’ suitcases and Sally went home last night, to see Sam, and is coming back tomorrow. We have decided, that for the time being, we need to have 2 of us here again. What would we do without Rachael and Reg to hold the fort at home?
There have been lots of bright moments this week, as well as serious ones. Naturally, a lot of them have been involved with food….you know us. Like the time Sally and I went along to McDonalds for breakfast, with a list as long as your arm, and then ‘sneaked’ it into the unit. Of course there isn’t much sneaking! Ella’s angels are in and out of the room all the time, and you can’t exactly disguise that McD’s smell, can you? Ella had a tiny taste of everything on the menu, so it was worth every moment. In fact, there have been quite a number of McD’s visits, now that we have found the way, through the hospital. This complete site is so huge, that you can walk along a central corridor, going through all the different departments, both children’s and adults, and end up half a mile later at McD’s on Oxford Rd!
What else have we done? Oh yes….had a ‘heated debate’ with the Head Teacher, of the school here, about the provision for Ella. It is difficult, we know that, working within the constraints of a tight budget, but there are ways of saying that without causing offence! Oh, and Ella made cakes yesterday, with Liz (teacher), who has turned out to be good friends with Ann ( cookery teacher from Pendlebury? ) and between them they have come up with some recipes to make in the microwave. So, that was a first for us all….microwaved fairy cakes. They were good, too.
I shared the dormitory with Jackson’s Mum last night. Both families are long stay, and we are next door neighbours on the unit, so it seems very sensible for us to share the dorm just between us. We watched the dancing, then it was a quick read and lights out. ZZZZZZZZZZZZZ.
It’s 6.30am right now, on Sat morning. I took over from Damian at 4.00am and since then Ella has been quite settled. The lockout time on the button has been put back to 30mins, for the time being, so she is more wakeful at times, waiting for it to be pushed!
Anyway, lots of love from us all here. Thanks, as ever, for your support and loving prayers.
Ella, Damian and Annette.xxx
PS My flowers are so beautiful Kate and Stephen. They really have cheered me up….not to mention the dorm!xx
PPS Hi to Martin and all our friends at AMC. Sorry I didn’t get back to you, Martin, I’ll definitely catch up with you this week. What’s it like to be back in harness?x
PPPS Big thanks to Auntie Andrea for taking ‘Bumbs’ for his hairdo. Did the lady stuff a cushion with his fleece? xx
Friday, 18 September 2009
Days 223,224 (Thurs and Frid 17th,18th Sept)
Hello again from us here. I’ve decided to do a double whammy tonight and include our news from both days. Actually I was really tired last night and fell asleep quite early. It was perhaps a good job, because after that we had a very wakeful night indeed, with Ella having the snuffles and earache.
Yesterday though we had a trip out to find ‘the other’ coffee shop. Andrea took us and Amy ( another little girl on the unit). Amy has been that way before with her Dad, so she was able to show us the route. I think that was just about the most exciting thing for yesterday. We were too late for physio because Ella was very sleepy, and when her teacher came Ella had a very short lesson……..more zzzzzzzzzzzzzzzzzzzzzzz’s.
Today has followed much the same pattern, with Ella tired and full of cold. She has kept me very busy, in between sleeps, but I did get a short break when Linda arrived to be with us for an hour or so. I took the opportunity to go down to the coffee shop. Ella trusts Linda now, so it is fine to leave her for a short while. When I got back we washed her and got her up, and who should walk in…..Reg. He brought Ella some more Sylvanian family, so that made a welcome distraction.
It wasn’t long before Liz ( teacher) arrived and Ella joined in her literacy lesson. She didn’t really want to ( Ella that is) but we got there in the end. The same thing happened today as well. We just have to work around all the reasons Ella gives, as to why she can’t join in, and give masses of praise when she does.
We had a visit from the ENT Dr today, who came to look at Ella’s ear. When he came back later to check on her he had a bar of chocolate in his pocket for her. She was asleep and missed the moment, but I thought how kind that was to remember her?
At the moment I’m watching ‘Strictly’ and writing to you….Ella is asleep, so it seems a good time to take a few minutes out.
Night night and lots of love to everyone. We send all our usual thanks for your support and loving prayers.
Ella and Annette.xx
Hello again from us here. I’ve decided to do a double whammy tonight and include our news from both days. Actually I was really tired last night and fell asleep quite early. It was perhaps a good job, because after that we had a very wakeful night indeed, with Ella having the snuffles and earache.
Yesterday though we had a trip out to find ‘the other’ coffee shop. Andrea took us and Amy ( another little girl on the unit). Amy has been that way before with her Dad, so she was able to show us the route. I think that was just about the most exciting thing for yesterday. We were too late for physio because Ella was very sleepy, and when her teacher came Ella had a very short lesson……..more zzzzzzzzzzzzzzzzzzzzzzz’s.
Today has followed much the same pattern, with Ella tired and full of cold. She has kept me very busy, in between sleeps, but I did get a short break when Linda arrived to be with us for an hour or so. I took the opportunity to go down to the coffee shop. Ella trusts Linda now, so it is fine to leave her for a short while. When I got back we washed her and got her up, and who should walk in…..Reg. He brought Ella some more Sylvanian family, so that made a welcome distraction.
It wasn’t long before Liz ( teacher) arrived and Ella joined in her literacy lesson. She didn’t really want to ( Ella that is) but we got there in the end. The same thing happened today as well. We just have to work around all the reasons Ella gives, as to why she can’t join in, and give masses of praise when she does.
We had a visit from the ENT Dr today, who came to look at Ella’s ear. When he came back later to check on her he had a bar of chocolate in his pocket for her. She was asleep and missed the moment, but I thought how kind that was to remember her?
At the moment I’m watching ‘Strictly’ and writing to you….Ella is asleep, so it seems a good time to take a few minutes out.
Night night and lots of love to everyone. We send all our usual thanks for your support and loving prayers.
Ella and Annette.xx
Thursday, 17 September 2009
Day +222 ( Weds Sept 16th)
Hi. Here we are again on Weds evening. Sally and I have had our change over day and she is safely home in Southport. I know from what she has told me that Ella has had good days since I left last Saturday. I also know that she has made the most delicious cheese cake, with Sally and the OT,s. It is very professional looking and tastes fab too.
The last few days in Southport have been very busy…..I’ve been staying at Rachael’s to help her out. It’s hectic all the time with four little ones. It’s hectic even when they’re all out at school or nursery! But today really took the biscuit. I hardly know where to begin, except to say that a fine toothed comb was involved and all of us had to be done!! It was a relief to be back in Manchester, for a little peace and quiet. ( in 30yrs of being a Mum, and even longer of being a teacher, I have never been so flabbergahasted! To add insult to injury the Hotpoint man arrived in the middle of the mayhem. Oh misery…..).
Anyway, back to Ella. We have spent a few happy hours watching TV….The Hairy Bikers and Masterchef and now we are both tired out. Ella has been asleep for quite a while actually and I’m just about ready to lie down. I’m full of cheesecake and tea, so I think I should stop right now before another slice slides down.
I know that Ella has had a really quiet day today, she hasn’t felt up to joining in. I think an increase in certain medications has knocked her out. So fingers crossed that she will be back on form tomorrow, and ready to enjoy everything that’s planned for her.
Night night from both of us here. We send you all lots of love and thanks, as usual, for your loving support and prayers.
Ella and Annette.xx
PS Thankyou so much to the Waites for Ella’s butterfly. She is now flying high, from the hoist on the ceiling.x
PPS Hello to everyone at OLOL. Hope the beginning of term is going well and that all Ella’s friends have settled into their new Classes.x
Hi. Here we are again on Weds evening. Sally and I have had our change over day and she is safely home in Southport. I know from what she has told me that Ella has had good days since I left last Saturday. I also know that she has made the most delicious cheese cake, with Sally and the OT,s. It is very professional looking and tastes fab too.
The last few days in Southport have been very busy…..I’ve been staying at Rachael’s to help her out. It’s hectic all the time with four little ones. It’s hectic even when they’re all out at school or nursery! But today really took the biscuit. I hardly know where to begin, except to say that a fine toothed comb was involved and all of us had to be done!! It was a relief to be back in Manchester, for a little peace and quiet. ( in 30yrs of being a Mum, and even longer of being a teacher, I have never been so flabbergahasted! To add insult to injury the Hotpoint man arrived in the middle of the mayhem. Oh misery…..).
Anyway, back to Ella. We have spent a few happy hours watching TV….The Hairy Bikers and Masterchef and now we are both tired out. Ella has been asleep for quite a while actually and I’m just about ready to lie down. I’m full of cheesecake and tea, so I think I should stop right now before another slice slides down.
I know that Ella has had a really quiet day today, she hasn’t felt up to joining in. I think an increase in certain medications has knocked her out. So fingers crossed that she will be back on form tomorrow, and ready to enjoy everything that’s planned for her.
Night night from both of us here. We send you all lots of love and thanks, as usual, for your loving support and prayers.
Ella and Annette.xx
PS Thankyou so much to the Waites for Ella’s butterfly. She is now flying high, from the hoist on the ceiling.x
PPS Hello to everyone at OLOL. Hope the beginning of term is going well and that all Ella’s friends have settled into their new Classes.x
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