Day 233 (Sun 27th Sept)
Hello again and welcome back. It’s just like yesterday really….I’m sat here, it’s about 5.00am, in the peaceful atmosphere of Ella’s room, listening to zzzzzzzz’s from Ella and Mummy and thinking about the news to tell you today.
Ella had a much better day yesterday….so that is the first thing to say. In fact she was sat out in the big green reclining chair ( I’ll tell you about that later) all day. We began with an early start, for us that is. Ella had her hair washed and we chose something pretty to wear and then she sat out and did some painting with Sally. ( it’s the 1st time she’s sat out for over a week.) It was great to see her engage in an activity like that.
Sally then disappeared to get us some lunch….on Sunday the canteen has a reasonable roast. WELL, when she got back there was steam coming out of her ears and she went on to explain what a performance she’d had trying to get satisfaction for the £16 pounds we were paying for 2 dinners and puddings etc. I hear that the whole queue started to rumble too….so maybe the ‘powers that be’ will have enough food for everyone next week….cooked on time….and not served in the smallest take away poly/dish in the world with everything piled on top of the other!!!!
After lunch we were looking forwards to X Factor….Ella was all ready….button pushed…. Comfy pillows etc. Then the beeps started and in came a flurry of angels, all helping each other out to get the pressures correct on Ella’s pumps. The only problem was, for us, that they were stood right in front of the screen. We could hear but not see! By the end of the programme we had given up and Ella had returned to bed to watch Grease….in between the beeps. Mind you she was tired, so a little snooze was in order.
We had a lovely surprise visit, from Uncle John, a little later. We had another trip to the canteen to get some tea, so that Ella could ‘help’ Uncle John to eat it….yes a lovely visit.
Did I tell you about the BGC ( big green chair?) Well, last week Jo, transplant co ord nurse, took pity on us when 3 of us stayed over, and she found us a reclining bedside chair, so that we can be closer to Ella during the night and even get some sleep. We are the only room to have one, so don’t tell anyone will you? I think eventually all the rooms will have one…but for the moment, in our case, it has made a great difference to Ella, because she can see us during the night and hold hands etc AND it’s comfortable!!!
I’m not sure what’s lined up for us today yet. I know Liz will be coming, and the physio and all the other usual, weekly activities we have.I think we may have some visitors too….Grandma and Grandad are back from holiday, so I guess they will be coming along very soon.
I’ll close now and get this posted off. It will be coming light soon and I want to have another cuppa before the ward starts to be on the move. I’ve got to run the gauntlet of crossing the bridge, to get back to the dorm.,in my spotty pj’s yet. It’s not too bad at the weekend, when the place is empty….but during the week everywhere is heaving from very early morning.
Night night from we three. We send you lots of love and our usual thanks for your prayers and loving support.
Ella, Sally and Annette.xxx